Finding support on Facebook

A good support network is key to facing the many challenges that can come with fibromyalgia and chronic pain. Our friends and family help, but it is always nice to talk to people who know exactly what you are going through.

Today, just about everyone is on Facebook, a social networking site. Organizations now have a presence on Facebook were you can communicate directly not only the organization, but with others who are going through the same challenges you face daily.

Many people use Facebook over Google as an online search tool. Even in the past year alone, Facebook has closed the gap on user search preference. (via Mashable 1/20/2011) So why not use Facebook for your health support as well?

Connect with the following Facebook pages online for more support:
Foods For Fibromyalgia

Deirdre Rawlings manages this Facebook group. Follow it to receive updates on how your diet impacts your health.

Lumigrate: Fibromyalgia on Facebook

This is Lumigrate’s Facebook bulletin board to remind people of everything that is happening on their website.


National Fibromyalgia Association

When you follow the NFA’s Facebook fan page, you can connect with other fibro patients and supporters. The site posts everything pertaining to educating, empowering and encouraging the fibromyalgia community.

These are just a few examples of the social communities on that I follow on Facebook.
What Facebook groups or pages do you follow? Please let us know by sharing your comments!
Thanks!-Amy

The National Fibromyalgia Association goes big on social media

n27225676432_9769I have been a member of the National Fibromyalgia Association for some time now. They are a wonderful organization to gain insight and find resources.

Please take a minute of your time to watch this short video from Lynne Matallana, president and founder of the National Fibromyalgia Association:

Or, you can read the email I received from them:

“The National Fibromyalgia Association launches campaign to reach
10,000 Facebook Fans by October 1.

ANAHEIM, Calif. (Aug. 3, 2009)—The National Fibromyalgia (NFA) has launched a campaign to get 10,000 “fans” on their Facebook Page by October 1, 2009. (A Facebook Page is an organization’s public profile that allows them to share news and announcements with Facebook users. “Fans” are Facebook users who follow the organization’s posts and are able to share them with their own network.)

The campaign, called “10,000 for 10 Million,” refers to the 10 million people in the U.S. who are suffering with fibromyalgia, the complex chronic pain disorder usually characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress.

“10,000 for 10 Million” is the NFA’s first major social media campaign on Facebook, and aims to raise awareness of fibromyalgia and the National Fibromyalgia Association through the popular social networking site which attracts over 90 million visitors per month.

Lynne Matallana, president and founder of the National Fibromyalgia Association, admits that with just two months to reach their target goal of 10,000, the campaign is ambitious. However, the need to bring awareness, help and hope to those suffering with fibromyalgia is even greater.

“We want to let as many people as possible know about fibromyalgia and the NFA, and Facebook is one of the most powerful ways to do that,” explains Matallana. “We also want to empower the fans to share this information with their friends and family members. It takes just one or a few clicks on your keyboard to become a fan of the NFA’s Fan Page or to share the page with your Facebook friends, but those few clicks go a long way to show support for those 10 million people suffering with this disorder.”

When I logged on to Facebook today, they are less than 1,000 fans away from their goal of “10,000 for 10 million” campaign!

Let’s help them reach their goal!
You can reach The National Fibromyalgia Association at www.fmaware.org to become a member of the organization.

To become a “fan” of the NFA’s Facebook Fan Page, go to: http://www.thefibromyalgiaassociation.org/ and click on the Facebook icon. (NOTE: New Facebook users must first sign up on the Facebook homepage before accessing pages.)
or click on here

The sky is the limit on where these social connections can go!

%d bloggers like this: